Michelle's cancer story
1996 - November: Radiation Therapy
The confidence that I carried in with me to the follow-up appointment
after vaginal surgery was sharply eroded during the consultation
with Dr. Miller. She advised me that I was a good candidate for
radiation therapy. Reeling in shock, I question what constitutes
a "good candidate"?
Gently, she followed my request to be fully honest with me at all
times; I am advised that radiation is recommended to address any
cancerous lesions that may have penetrated the vaginal wall and
invaded the pelvic region. If I agree, she will order the procedure
scheduled as soon as possible.
In a very short time, I am making reservations at the cancer lodge
across from the cancer clinic and determining the best method of
traveling back and forth to home from the lodge for weekends. The
schedule for the radiation treatments is Monday to Friday. I will
be receiving 4 "shots" per day for 5 weeks. That folks
is 100 "shots" of radiation to a very small specific area.
We make jokes about my becoming the tattooed lady; the 4 radiation
sites will be marked with ink dots. We make jokes about my glowing
blue in the night.
The staff is incredibly helpful and compassionate. In no time,
I am installed in my room then escorted on a tour of the premises;
introduced to the cafeteria and advised of rules and regulations.
Memories of dorm living make me smile.
Not knowing what to expect, I report to the first treatment racked
with anxiety. The reality is grimmer than I had imaged. Nearly nude
I am positioned on a narrow metal grate-like bed and draped with
lead shielding protectors exposing the 3 inch square over my pubis
to radiation. The huge revolving drum of the linac is positioned
to the ink spot tattoo and everyone retreats behind shielded walls.
The room is almost totally dark.
The hum of machinery heightens; the feeling of the radiation is
a subtle tingling on my skin then the technicians return and reposition
the drum to my right hip. The procedure is repeated to both hips
then again under my backside in direct line with the pubis. The
picture in my head is myself on a metal tongue as a sacrifice to
the machine gods.
My secret mantra whispered repeatedly helps me protect my inner
being from this assault upon my body.
"Earth is my body, water is my blood, air is my breath
and fire is my spirit." I visualize the trees, the ocean,
the moon and the grass under my feet. It helps.
After dressing, a female medical someone approaches me and asks
if I will participate in a survey to track the responses to radiation
treatment both emotionally and physically. She tells me that gathering
specific data will be of benefit to research and developing therapies.
This touches me. If what I am experiencing can be of use in helping
another woman through this ordeal I want to do it.
My roommate is very sick, everyone is sick. Dorm living at boarding
school didn't prepare me for the assortment of ages, genders, personalities,
stages of illness, the visual assault of cancer of the throat or
eye or skin or nose or brain. Other cancers are decently hidden
under our clothing.
Standing in line at the cafeteria, the awareness of the others
I am sharing this experience with overwhelms me. I feel I am in
a zoo. The keepers are awaiting us at the clinic everyday. Anxiety
bordering into panic makes it difficult to breath. I smile and gather
smiles. Everyone here is the same, old or young, tall or thin, man
or woman. We are in terrified, in fear of our lives.
Not at any previous time, not the cervical cancer and resultant
hysterectomy 9 years ago; not the vaginal cancer and both the laser
or radical surgeries have I felt this threatened.
Day 3 - my roommate is gone and another woman is sick in my room.
Her breathing is labored; she spends most of her awake time in the
bathroom. I wander the halls, join in cards and board games, look
into the various recreation areas, glance at TV, exchange wan smiles
with my fellow inmates.
Day 5 - Friday's appointment with the machine god of radiation
is over.
Here comes the survey team reminding me of that moment of humanitarianism
when I volunteered. Every Friday for 5 weeks they will meet me here
to donate body fluids; I label it the "spit, bleed & pee
pack".
Fielding questions about my emotional being is more difficult than
I thought, as is the physical exam. It seems like a herd of excited
medical students are scheduled to see a rare vaginal cancer surgery
site and with attending radiation results. They are a bewildering
variety of young faces over hospital whites. Their comments reflect
their age. I forgive them, calling them "subway inspectors".
Escaping, I pack and leave immediately to begin the odyssey of
wending my way through the unfamiliar city on a variety of buses
to the ferry. Exhausting hours later I reach out to the familiar
arms and cling almost desperately. I am home.
The weekend was a puff of time, I must return. Not since my pre-school
days have 4 weeks seemed to stretch into the infinity of time.
The
desperation of isolation among so many is so disconnecting from
any reality. Gratefully, I am alone for now. Treatment number 7
puts me into immediate total menopause, hot flashes, mental confusion,
nausea and insomnia. I am developing skin tenderness at the four
radiation sites and diarrhea. My room becomes my refuge, with hoarded
food I can avoid seeing or talking to anyone.
The afternoon of Day 8, my door slams open and a woman with wild
silver hair dressed all in swirling black carrying enough luggage
for a journey around the world including what looks like a mattress
bursts in. She announces that she'll be right back with the rest
of her stuff and then we can introduce ourselves. I flee and find
a hidden corner to huddle in misery.
Some time later, she finds me. My new roommate, Shirley, is uncharacteristically
gentle as she asks if I am disturbed by her presence. This seemly
larger than life exuberant woman is reaching out to me. I unfold
and reach towards her and we connect. We talk and talk and talk,
we talk most of the night away. She feels inconvenienced by this
bout with breast cancer. Surgery and radiation are but steps on
the path she is determined to take. She has an enormous amount of
living to do yet.
We determine to organize our schedules for first treatment early
every morning and then use the day to explore the city, to lunch
in different ethic restaurants, to enjoy everything we can. We research,
we talk, we play tourist, we play games, we laugh, we tease, we
cheer the entire lodge.
We
applaud the dedication of the staff and the volunteers. Oh the volunteers,
without them, the morale would plummet. Those cheerful ladies giving
so much of themselves.
Ours is a relationship forged in fire. With the march of treatments,
we too sicken, we suffer radiation burns, clothes are painful, we
sometimes weaken. When necessary, we rest. We share a room, we share
remedies, there are no secrets here.
With her help, my friend, I call her an angel, I survive this too.
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